Prose Poetry (An Exercise)

Some days, I forget that I have a chronic illness (rheumatoid arthritis, endometriosis, chronic migraines) today was one of those days.

This morning, I woke up as stiff and uncomfortable as I normally do; I mentally guided myself through a ‘check’ of every body part, joint, muscle. I slowly flexed ankles, pointed toes and cracked each one-by-one, wincing (as I always do) when my right pinky toe gets stuck mid-click.

My brain and body slowly move up to my knees, largely aware that my right is still very swollen from the night before (psh who am I kidding? the years…) so, I languidly glide my right hand around right knee, checking for any new bumps or lumps or divots or cracks, inflammation or some type of divine intervention to have wrestled with my immune system while I lay asleep (tossed and turned in discomfort all night) fighting for relief.

The inflammation stays. But now, it has moved below my kneecap. It has found a resting point there, below elevation and the valley between calf and knee…There used to be storms there; brought on my miles-long hikes up wilderness trails, high heels and stiletto dancing all night long, leather riding boots seemingly painted poetically against strong, slender muscle which after hours of use–in lethargy–would spasm shift, create jolts like bolts of lightening through worn out leg(s). But oh…here comes the rain: soothing as summer sun showers, tepid and bright. Bath water did everything massaging hands could not.

Now? Now the coolness scalds, unaware of fever or speckled heat rash. Now bath water only alleviates for a moment, while the pages are turned during my nightly novel. Once dried off and composed, the pain returns (laughable) as if it never has anything better to do than spend time with me.

Today was no different. After morning body checks and late afternoon pharmacy runs, my body became confused of overuse. The draining began in my head with a feeling of a lonely balloon, flying (floating) without a string. Nausea next, tied up alongside panic and misery–what’s this? what’s happening?–checklist one, two, three. The many medications can cause such issues, but that cannot be…something deeper, the cause.

Green lights spot your vision, vivid colors only I can see. Ahead of me a night of wilderness, of unknown, of space between awake and reality, wondering if the next one (flare) will lead me down this road. The road not yet taken (or the road least travelled by?) has seen many steps by you, ironically. It knows your every move, maps your location, leaves you right where you don’t want to be.

And of all the nights–I thought tonight would be different. That the path would be clearer and the pain would subside, that whatever Star I’ve been following would lead me on a new way home.

Here. Here it is, the old familiar track I trod, smelling of perseverance and pain, musty and dank of will power and self reliance–brightened by hope.

Wildlings

When conversations are between one person–I find myself hovering–the “out of body experience” we all feel when lectured to by an ‘OUTSIDER’.

We are Grateful, Glad, and #Blessed, that the ‘OUTSIDERS’ know not of our Suffering–but where does it end? The diatribe. When will we be understood with Grace and Empathy; when our Truth is not of insult but just that: our hearts are speaking.

Sometimes we are locked in frozen chambers–a tundra so vast and dry, the only other contact are those that also inhabit here.

Grateful to you, my frozen Sisters, Brothers of the “Night’s Watch”: We ‘Wildlings‘ couldn’t do without your protection–left here to ascend our Wall alone…

Lavender Headwraps are NOT for Fashion…

Well—I have a migraine today :sigh: One I have attempted to get rid of ALL day long! And before I went to lay back down, I wanted to share with you some of the headwraps I use during migraines.

Let’s get to some pics!

I use this for my neck & it has lavender beads!
This is the one I’m Currently Wearing

I also use my triptans like Frova (takes longer to work but also lasts longer) and Relpax is my go to since it works quickly and takes my migraines away pretty much entirely.

Remember: Triptans are abortives so you want to take them at the first sign of migraine, preferably before pain even begins! The best way to learn what your migraine triggers and prodromes are, is to create a headache diary and write down all headache symptoms (even those that aren’t painful such as sensitivity to light & sound; also mood changes before a migraine are common like feeling down and even large bursts of energy–you may feel extra creative or productive! Some migraine sufferers, like myself, get auras before and during a migraine–note: you may get auras without having any headache pain and although odd it’s much better than pain–these include smelling things that aren’t there (I’ve smelled bacon, popcorn, metallic things, so it varies) hearing bells, ears ringing (I get this all the time) seeing flashing lights & many more).

It’s important to take your triptan when you have an aura because you never know if you’ll just have auras or the full blown migraine.

Hopefully this has been of some help, and that you’re all celebrating this month migraine-free!

The State Between Awake and Dreaming and Remembering

It’s another one of those solitude soaked nights again; where my pillow becomes heavy with pain like pollen, floating from space to space and joint to joint–aimlessly the night buzzes in the stillness.

Softly, I remove the Summer-light lavender comforter from my burdened body, thinking (but really praying) that the two pounds will loosen the weight of the day, the days I’ve spent carrying around such a burden of illness in my gypsy bones.

They are always stunned, confused. I have always been a fairy with clipped wings. Hour-by-hour tracing steps to see how I could’ve done something better, leaving trails of pixie dust in my wake, across the eyes of my believers, but for some reason never enough for me.

I should’ve married Peter Pan, sewn my glitter into the threads of his shadow while we forever traveled to and from our Neverland, never landing on times past or reverie. But, I spent too much time on Captain Hook with his clock–my inner child–counting down the wasted away years he planned to steal.

He played the parts of savior and captor together all too well, the Captain. Smiling his crocodile smile through waters deep, and had jaws of death and jagged life just the same.

But around here, there is no luxury of retrospection, only present tense or future flux. It seems as though space remains incomprehensible to many, but when all you have is ‘the state between’, you tend to notice the nuisance of change.

I wish five years ago before my RA diagnosis, I would have been more aware of my ‘state between’–would have recognized the flutter of my fairy wings and the pulsing of my gypsy heart. In previous years I would spend too much time pondering the could have beens, would haves, should haves if I only might haves!

These days, even during nights like these while I’m stuck in the ‘state between’ and hot tempestuous pain, I sit in the present, stay thankful for tomorrow, and allow my gypsy heart to perambulate without concern.

As pixie dust slowly begins to soften my steps, my journey–I remember the song of my heart– my purpose of channeling pain into purpose into passion. Then, sharing my passion with you 💜

Monday Morning Memes

Well!!!!! It’s that day again–Monday 😩

The first day of the week when we just try to make it through until the weekend, again. The day when all of Friday night and Saturday day’s festivities have either taken their toll, or created a slow-burning, yearning down in our souls whispering to us, “Do it again…Do it again”.

But I mean, how many times can one excitedly leave the couch to triumphantly answer the door for Amazon Prime deliveries?? In FRESH pjs nonetheless! How can we ever top the fascination of finally washing that laundry that’s been sitting stacked in our laundry room for two weeks because our legs, wrist, shoulders, waist (body) has been too tired to move along with our own existence? And wait! What about just the triumph alone of not canceling plans with your in town/out of touch friends for once?! Like, it has been about two months since you’ve seen anything outside of your own four walls, your office, and that coworker who always hangs around your cubicle giving you puppy dog pity faces even though she has absolutely no idea what chronic illnesses you have–and if Laura and Jessica say one more time, “Oh. My. God! I have terrible cramps, too! Period sisters!!”–you will seriously start to fantasize about which Lifetime movie you can reenact without getting caught and going to jail, citing temporary insanity…A woman finally snaps on office workers who don’t bother to look up what endometriosis is and constantly compare their butterfly 🦋 fluttering of period cramps to the T-Rex 🦖 stomping inside her uterus on a daily basis in…‘Endo Put Her To An End, Yo’. Yes! Such amazing triumphs throughout this past weekend, and I’m sure so many more to come this week. All of us with chronic pain and illnesses know that even the minute of accomplishments are mountains to many of us! And for that very reason, I wanted to start off this week with some of my favorite chronic pain and chronic illness memes I have come across! If you happen to find any that you’d like to share, please feel free to comment them below OR email them to me @britr2002@yahoo.com and I’ll put them in my post next Monday morning!

1.

I mean…yassss

2.

If I hear one more time “Exercise will make you feel better!” When I can’t even move…

3.

4.

LIES!!!!!

5.

One. Of. My. Favorites.

6.

Every time! Such a Catch-22!

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I knew I was talented, but this is too much.